Showing posts with label tubes in ears. Show all posts
Showing posts with label tubes in ears. Show all posts

Sunday, January 26, 2014

Underwater


Sophie hadn’t been hearing us for several months now, her ears perpetually filled with fluid.  I try to be patient, but it is wearing to constantly have to repeat yourself.  To constantly be shouting.   I get frustrated. 

I wonder if other parents of hard-of-hearing children feel this way. 

The ENT was reluctant to place tubes in her ears again.  He wanted to see if the fluid would clear on it’s own.  This Fall, she had two ear infections, but he told us the magic number was three.  “Let’s just go ahead and schedule the operation, anyhow,” the nurse told us, surreptitiously, after the doctor had left the room.  “I’d hate for you to wait and then not be able to get in.”

Sophie never had the third infection, but when we went in for the final ear check, she was still clogged up. 

“It makes sense to do it,” the doctor conceded.  He told us it was standard to take out her adenoids as well, the second time around.  “They can block the ears from draining,” he explained.   So I signed the paperwork, and we waited for the appointed day.

The night before her operation, I had a silly, irrational fear:

I love her so much; is this the moment in time when I will no longer be allowed to have her? 

There is still a part of me that feels like she is on loan.  I have the sense that it’s a leftover from my miscarriages.  An insidious little seed of fear that I am unworthy of having a child.  That I got lucky.  That my luck will run out. 

My very pragmatic husband, who does not believe in things like luck, who never believed we would not have a child in the first place, reassured me that it would be fine.

The fear gnawed at me a bit, the night before, but I managed to fall asleep.

The day of the procedure, there was fourteen inches of snow on the ground.  All the world was still, except for the sound of a shovel scraping against the driveway—my husband shoveling a path from our Subaru to our icy street. 

“Can I please have something to eat?” Sophie asked, knowing that she couldn’t.  Probably asking because she couldn’t.  On most days, she’d much rather read or play than eat breakfast. 

“Soph, you know you can’t.  When your operation is over, I’ll make whatever you want.”

“Even chocolate chip pancakes?” she asked slyly.

“Even chocolate chip pancakes,” I assented, ushering her into the shower.  Though she fussed as I washed her hair, I reminded myself to be patient.  I had the thought that I didn’t want a single harsh word out of my mouth that day.  Just in case. 

The roads were quiet.  Even the hospital was silent.  It felt as though everyone in the world had gone underground, with the exception of our family and the receptionist checking us in. 

Once inside there was considerably more activity—nurses bustling about, machines beeping.  A child wailed continuously in one room, with a sing-songy video tape playing in the background.  Sophie was weighed, measured, and given blue pajamas to change into.  She looked excited and happy as she hugged Snakey Pie to her body.  Snakey Pie looked filthy and I wondered if a dirty stuffed snake would compromise the sterility of the operating room.  The only thing Sophie remembered about her procedure from last year was the Icee machine in the recovery room.  She asked the nurse what flavors they had.  She made a face as she sipped her giggle juice.  Before the Valium was flowing through her veins, I began to feel woozy, as if it were me, not her, who had taken the medicine. 

Before long, three nurses converged to wheel her away.  They asked her questions about Snakey Pie and which grade she was in as they lifted the rails of her bed.  “Kindergarten,” Sophie mumbled, her eyelids falling to half mast.

“You’ll see your mom and dad again in a few minutes,” one nurse told her.  Sophie’s eyes flew open, fear trumping the sedative effects of the giggle juice.  She started to cry. 

I was fine until she started to cry. 

I managed to hold back my own tears until I had said a few words of reassurance, that I loved her and I would see her in no time.

One of the nurses reminded me that the Valium creates some amnesia for this moment.   And then she was gone.  Kevin and I were ushered into the waiting room.  It was suggested that I eat something, “We don’t want you winding up on a stretcher next to your daughter.”

“That happens?”

“More times than you’d think.”  I wasn’t going to pass out, but I was hungry.  I decided to get a cup of coffee.  The Kerig machine wanted 75 cents for a cup. 

I raged against the coffee machine.  Didn’t pay, and left my punctured pod of decaf inside. 

The forty minutes passed more quickly than I had expected.  Suddenly, the surgeon was in the room telling us in his hurried way that the operation went fine, she was packed with fluid—“underwater”—her adenoids were “moderately swollen” and it had been the right thing to do. 

Finally, I could exhale. 

There is nothing like seeing your child in pain.  I can recall my own mother saying to me, when I was in pain as a child, “I wish that it was me, not you.”   Like my mom, I would have gladly switched places with Sophie in the recovery room, just so that I would not have to see her face screwed up, her eyes full of tears. 

Sophie refused the Icee that the nurse offered to her, moaned, “Mom,” and reached her small hand up towards me. 

“I can give her more medication,” the nurse said, injecting acetaminophen and codeine into her IV.  Within a few minutes, Sophie was back asleep. 

“She’s having a very good response to the pain medication,” the nurse reassured me.  “You’ll see.  If she can get another hour of sleep, she’ll wake up much more comfortable.” 

“Why don’t you have a seat,” Kevin said, offering me the chair next to her bed. 

“No, thanks, I want her to be able to see me when she wakes up.”  I stood, and whispered to the nurse about nursery school, her daughter’s new teaching job, and the instructions for Sophie’s discharged, while the machine hooked up to her offered a steady beep. 

After an hour, Sophie stirred again.  She shifted in the bed as if she couldn’t get comfortable.  The nurse held a continuum of faces in front of Sophie and explained that the 0 face was no pain at all, and the 10 face was pain so bad it made you cry.  She asked Sophie what her pain was. 

“An eight,” Sophie squeaked out.   This surprised me.  She isn’t one to exaggerate. 

“I could have used a chart like this after Sophie was born,” I joked to Kevin.  When I was hemorrhaging internally, complaining of pain the nurse misattributed to hemorrhoids, she had asked me the same question.  The pain was so bad, all I could think about was there was no way to be—I was in too much pain to stand, too much pain to lie down.  “A six,” I had told her.  I thought that a 10 must be what it was like to be in a car accident and lose a limb, or have bones and intestines exposed. 

The nurse gave Sophie another dose and again she dozed, this time more briefly.  When she awoke, she refused an Icee again. 

This was indeed the worse I have ever seen her.   I started second guessing our decision to have her go through this. 

When she was conscious enough, she slipped on her clothes, allowed Kevin to lower her into the wheelchair, and the nurse pushed her out into the frigid parking lot.  On the way home, she fell asleep again, opening her eyes suddenly when we pulled into our driveway. 

“Mom, I just want to sleep.”

“Okay.  Okay, shhhhh.”  I told her.  Kevin carried her upstairs and tucked her into bed. 

“Mom, would you just sit in the room with me.” 

“Sure, sweetheart.”  I sat until she was fast asleep, and then I headed downstairs and had some lunch.  She woke about an hour later.

“You left my room,” she accused.  “Did you tell me?”

“Yes.  I whispered, while you were sleeping, that I was going down to get some lunch.”

“Can I have some lunch?”

“Of course.  You’re hungry?”

“Very.”  All traces of pain seemed to have dissipated. 

“What would you like?”

“Mom!  You know!  Chocolate chip pancakes.”

“Okay.  Right.  That was what we had talked about.  I wasn’t sure you were up to it.”

“I’m up to it.  And mom?”

“Yes?”

“Could you please stop talking so loud?”  

Music to my ears. 





Sunday, January 29, 2012

What? What Did You Say?

About a month ago, Sophia visited our pediatrician for a routine, yearly check up. Now that she’s four, the doctor administered a hearing test for the first time since her birth.

Sophie eagerly followed the nurse into the small room at the end of the corridor. She hopped into the chair, allowed the nurse to set a pair of large headphones over her ears. Sophie listened eagerly as the nurse instructed her to point to a picture when she heard the word.

She loved the game of it. Her face was screwed up with concentration. On the first couple of trials, I watched as she happily pointed to each picture.

Then she waited. She glanced up at the nurse to see why the game had stopped.

It hadn’t.

My heart sank as I watched Sophie fail her hearing test. The nurse did four sets of multiple trials, each time the decibel level dipped below a certain threshold, Sophie showed no indication of hearing.

An expert in catastrophizing, I quickly flashed to a deaf future. A world without music, without voice. Of having to learn sign language. Of accommodations and devices.

And it all made sense to me. On some preconscious level, I knew she hadn’t been hearing well. Asking me to turn up Beauty and the Beast in the Car because she couldn’t make out what Chip was saying (though I could hear him, plain as day). Or the fact that she says “What? What did you say?” a lot.

I thought she was just tuning me out.

When we met with the doctor, I tried to keep my distress at bay, while I asked her about the test. She was unconcerned. “Oh, lots of kids fail the test. It’s hard to keep kids focused on the task at this age.”

Not Sophie. She was into it.

I pressed. I told her about the recent discovery of fluid in her ears at her last appointment. Of her cough that lasted two months. The doctor obliged me with a tympanogram, which passes a sound wave through the ear to see if the ear drum would vibrate.

When it didn’t, my wonderful doctor drew a quick diagram for me, explaining how fluid in her hears was preventing this vibration, that the hearing loss was likely due to the fluid and not to worry. It would resolve. Still, she sent us for a more detailed audiogram, that would help us determine the degree of loss (if it hadn’t resolved by that point), and to discern whether it was an inner (equipment) or outer (conductive hearing loss because of the presence of fluid) problem, and give us a baseline for comparison in a couple of months.

We saw the audiologist at CHOP a few weeks later. She was friendly, and engaging. Sophie took an instant liking to her. After taking a history (Did she have a hearing test at birth? Pass it? Yes. Yes. Any history of hearing loss in the family? Yes. Kevin’s side. How old were they when they lost their hearing? Older. 40’s 50’s 60’s . Had we noticed a difference in her hearing? Yes, I did. For how long? Within the past year. It’s so hard to pinpoint these things, in hindsight.

She began to test Sophie, “I’m going to put these headphones on you. When you hear a sound, I want you to put a peg in the pegboard. Okay?”

“Okay!” replied Sophie, enthusiastically. She carefully watched the audiologist’s face. I watched Sophie’s. It was clear she heard the first few tones, giving a slight nod or announcing, “I heard it!” as she jammed a peg into the board. Then, her face dropped. She didn’t look quite as sure. The audiologist looked at her expectantly, and Sophie put the peg in the board.

“Good!” said the audiologist, unwittingly rewarding Sophie for attending to her prompt. On the next several trials, the same thing happened. Sophie watched the audiologist, the audiologist unconsciously signaled her with eye-contact when she played the tone, and Sophie, wanting to do it right, stuck a peg in the board.

I said, as gently as I could, “I think she’s looking at you for cues. Could you not make eye contact with her?”

Wordlessly, she immediately broke eye contact. And that’s when Sophie began not hearing, again.

Later the audiologist explained that her hearing loss is slight and conductive. She’s guessing at what we’re saying when we’re whispering and its probably a little worse when she has an active cold. When I was a child I had three myringotomies—tubes placed in my ears. Kevin had them once. Looks like her genes were stacked against her.

I am relieved. I wish that I could stay cognizant of how magnificent it is that we have our senses to perceive the wonders of the world. It is a shame that it takes a small scare to awaken me to how precious our hearing is. Today, I am listening with gratitude to: my daughter’s voice singing in the back of the car, the whisper of “I love you” in my ear, and even the pesky birds that greet the day with such joy in the tree beside my bedroom window.